Multidisciplinary Pre-Congress Day

Preliminary Programme | Tuesday, 4 February

12:00 – 13:00 REGISTRATION AND LUNCH
13:00 – 13:45 JOINT SESSION: Insight into the care of patients with rare bleeding disorders in the Netherlands
13:00 – 13:15 Welcome and Introduction K Fijn van Draat
13:15 – 13:45 Panel discussion:

Multidisciplinary and interdisciplinary care in the Netherlands: Differences, opportunities and challenges

Chair: P de Kleijn

S Andeweg
G Mulders
M Timmer
L Haverman

14:00 – 19:00 NURSES SESSIONS
14:00 – 15:00 SESSION 1: Nurse-led research: Stepping out of your comfort zone Chair: S Fletcher
14:00 – 14:20 How to create a good poster & how to choose a research topic L Myrin Westesson
14:20 – 14:55 SLAM session
  • TWO TAILORED INTERVENTIONS TO IMPROVE ACCEPTANCE AND SELF-MANAGEMENT IN ADULTS WITH SEVERE HAEMOPHILIA: ONE SUCCESSFUL, ONE UNSUCCESSFUL
  • J W Hoefnagels
  • EXPLORING THE EDUCATIONAL AND TRAINING NEEDS OF NURSES WORKING WITH PEOPLE WITH CONGENITAL AND/OR ACQUIRED COAGULOPATHIES IN SPAIN
  • S García-Barcenilla
  • A SURVEY FOR DRUG INFUSION PRACTICES AND SELF-RATED HEALTH ASSESSMENT OF THE PATIENTS WITH HEMOPHILIA
  • T Aksu
  • NURSES EXPERIENCES OF MASS PRODUCT SWITCHING
  • D Pollard
  • HEMOVE – THE HEMOPHILIA LIFESTYLE COACH – AN EXTRAORDINARY PILOT PROJECT
  • A Devos
14:55 – 15:00 Interview and roundtable discussion with SLAM presenters
15:00 – 15:30 Break
15:30 – 17:00 SESSION 2: Bleeding disorders within the family Chair: S Grønhaug
15:30 – 16:00 Family legacy: Theoretical input G O’Brien
16:00 – 16:30 Family legacy: Learning from cases N Uitslager
16:30 – 17:00 Patients’ perspective: Interview with two women with bleeding disorders N Uitslager
M van der Ven
M Degenaar
17:00 – 17:30 Break
17:30 – 19:00 SESSION 3: Facilitating resilience and promoting mindfulness Chair: M Kavanagh
17:30 – 18:20 Facilitating resilience in nurses and patients P Bučková
18:20 – 19:00 Closing remarks & Evaluation E Müller-Kägi
14:00 – 19:00 PHYSIOTHERAPISTS SESSIONS
14:00 – 15:15 SESSION 1: What are the challenges for the physiotherapist today? Chair: R E Matlary
14:00 – 14:20 Differentiating between osteoarthritis and haemophilic arthropathy L Van Vulpen
14:20 – 14:40 Establishing a joint injection clinic – perspectives of the physiotherapist M Bladen
14:40 – 15:00 Clinical implications of early detection of haemophilic arthropathy L Van Vulpen
15:00 – 15:15 Discussion with the audience
15:15 – 15:30 Break
15:30 – 17:00 SESSION 2: Free Paper session Chair: S Lobet
15:30 – 16:40 10-minute Free Paper presentations
  • PHYSICAL ACTIVITY AND CARDIOMETABOLIC RISK PROFILES AMONGST IRISH ADULTS WITH SEVERE HAEMOPHILIA: THE IRISH PERSONALISED APPROACH TO THE TREATMENT OF HAEMOPHILIA (IPATH) STUDY
  • M Kennedy
  • PROJECT GYM: PROMOTING FITNESS IN HAEMOPHILIA
  • P Mclaughlin
  • DOLPHIN: DEVELOPMENT OF A HAEMOPHILIA PHYSIOTHERAPY INTERVENTION FOR OPTIMUM MUSCULOSKELETAL HEALTH – INTERIM RESULTS OF A RANDOMISED CONTROLLED TRIAL
  • D Stephensen
  • IDENTIFYING PERFORMANCE-BASED OUTCOME MEASURES OF PHYSICAL FUNCTION IN PEOPLE WITH HAEMOPHILIA (IPOP)
  • M Bladen
  • RELIABILITY OF THE ISTEP IN CHILDREN WITH HAEMOPHILIA
  • D Chugh
  • 499 HEMOPHILIA JOINT HEALTH SCORES (HJHS): PERFORMANCE OF THE HJHS IN DIFFERENT POPULATIONS
  • I Kuijlaars
  • PREVALENCE OF HAEMARTHROSIS AND CLINICAL IMPACT ON THE MUSCULOSKELETAL SYSTEM IN PEOPLE WITH HAEMOPHILIA IN THE UNITED KINGDOM; EVALUATION OF UKHCDO AND HAEMTRACK PATIENT REPORTED DATA
  • R Wilkins
16:40 – 16:55 Discussion with the audience
16:55 – 17:00 Announcement of the winners
17:00 – 17:15 Break
17:15 – 18:45 SESSION 3: Hot Topic Debates Chair: P McLaughlin
17:15 – 17:45 Is ultrasound really helpful in clinical consultation or is it a trend? M Aspdahl – YES, it is helpful
D Stephensen – NO, it is a trend
17:45 – 17:50 Announcement of the winner
17:50 – 18:20 Should haemophilia patients attend physiotherapy sessions in their own HTC? E Mauser-Bunschoten – YES
P de Kleijn – NO
18:20 – 18:25 Announcement of the winner
18:25 – 18:55 “Give a man a fish and you feed him for a day; teach a man to fish and you feed him for life”: Manual therapy VS self-rehabilitation T Flannery – Manual therapy
S Lobet – Self-rehabilitation
18:55 – 19:00 Announcement of the winner
14:00 – 19:00 PSYCHOSOCIAL SESSIONS
14:00 – 15:20 SESSION 1: Relevant issues regarding well-being from childhood to adulthood Chair: A Torres Ortuño
14:00 – 14:30 Children with bleeding disorders: what a child psychologist can do to help K Vandenabeele
14:30 – 14:40 Questions and discussion
14:40 – 15:10 My experience of running Wellbeing Workshops C Burgess
15:10 – 15:20 Questions and discussion
15:20 – 15:50 Break
15:50 – 17:50 SESSION 2: Psychological strategies to manage pain and promote sexual health Chair: C Burgess
15:50 – 16:20 Principles of pain management in haemophilia patients G Golan
16:20 – 16:30 Questions and discussion
16:30 – 17:00 EMDR used for pain management C de Roos
17:00 – 17:10 Questions and discussion
17:10 – 17:40 Sexuality and haemophilia E Laan
17:40 – 17:50 Questions and discussion
17:50 – 18:20 Break
18:20 – 19:00 SESSION 3: Shaping psychosocial haemophilia care in Europe Chair: L Haverman
18:20 – 18:50 Brainstorming session on building a network of psychosocial professionals in Europe: What can the EAHAD Psychosocial Group do for you? All
18:50 – 19:00 Closing remarks L Haverman
19:00 – 21:00 Networking Reception Dinner